Saturday 25th May was mixed. I was able to eat for the first time and I got out of bed with help from the HCAs. I felt very awkward as I had so many attachments. I didn’t stay out for long and didn’t eat much at all as I felt so awful. I had a phone call with my family who were all together at my parents 50th Anniversary party. I felt dreadfully sad not to be there but also glad that I had the operation and the cancer was in theory all gone.
I don’t remember much of this day other than trying to keep cool, sleeping and having a quick wash by the bedside. I remember I was still on antibiotics and fluids and that the Doppler of the graft site was every 3 hours.
However, by Sunday morning things felt a lot different. At around 4 am I asked for some of my own pain relief which I needed to eat with so I had toast and jam which was just amazing. I think I also had tea too. I then had breakfast but needed help to eat as my drip had moved and my hand and arm were swollen like the Michelin man’s. I had to hold my gamgee over me with the other arm which left me with no usable hands. A kind HCA helped me eat some breakfast and get into the chair and have a wash. I felt good in the morning but then I started to feel pretty lousy again. I couldn’t face seeing my poor husband and daughter who came for just a few minutes again before leaving me to rest.
The consultant came and turned the radiator off but it turned out it was so hot in the room the radiator hadn’t actually been on. I had too much fluid on board and told the Surgeon such. He was very good and just believed me which meant the fluids could be stopped and I could just drink normally. He approved the glove drain to come out and a dressing change and my catheter to be removed.
The nurses came and removed the drain, redressed my wounds and took the noisy fluid pump away. The drain removal didn’t hurt at all and having clean dressings and a fresh gamgee was good as it reduced the nausea.
I seem to recall eating some lunch and dinner but not much.
After the catheter came out I had to work out how to mobilise around the room to the bathroom and they measured my urine for a few hours just to check it was all normal.
It was another long night of drain emptying, antibiotics, Doppler checks and ice replacement.
Monday however was the day I turned the corner.. more on that to follow.